Who Cares? We Care

This month we are showcasing some of the supportive communities in our network, all of which offer so much to families in the UK.  Our second blog for this month comes from Lynne Barton of Entrust Care Partnership.

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In 2013 our organisation was set up as a response to the aspirations expressed by families caring for children, young people and adults with disabilities, additional or specific needs. People told us that they wanted services which they could trust, which were flexible and demonstrated a warmth for those closest to them, and our three Directors all have a wealth of experience in this field. All the money that we raise provides direct services for the benefit of disabled children, young people, adults, and families.

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Our regular activities include a Toddler Group in Harbury, Leamington for parents and carers and children under 5 years old; Play & Stay sessions to bring together parents and carers whose child has recently received a diagnosis or identification of a disability or additional need.  We hold these in local Children’s Centres; Disability Awareness training that we hold in partnership with Family Voice Warwickshire – provided to professionals across the UK; a Life Skills Group for young adults with disabilities to support them to fulfil their goals and aspirations; Let’s Get Healthy sessions covering physical activity and healthy eating during school and college holiday periods.

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You can see weekly updates about our groups and activities, including the Open Door Café in Hampton Magna – on our Facebook page.

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In addition to all of this, we have been particularly busy this summer with events and workshops. Our Who Cares? We Care sessions have been so well received, topics have included Sleep & Self Care and Healthy Living 24/7.

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In June we hosted a music festival aimed at young people over twelve years old, and then in July we held our Celebrating Children event.  This was a celebration of the lives disabled children, their siblings and parents, their contribution to our society and the joy they bring to everyone.

It was a joyful celebration of children whatever their ability and an opportunity to applaud all parents and carers for the fabulous care they give 24/7. It felt like a family party relaxed, chilled and no one worrying about saying to their child “don’t do that”, described as a freedom perhaps not found elsewhere.

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We have also been able to hold workshops with Aimee Mann on the topic of Getting Your Voice Heard – How To Be A Velvet Bulldozer.  A parental perspective on building emotional resilience.

Some of the families that we support have kindly shared with us their experiences:

“Entrust Care Partnership are an incredible organisation who genuinely know how to reach out to families of children with additional needs. As a carer I have personally benefited from one of their training courses which was superb and I have attended two of their events for families which were exceptionally organised. They understand the challenges parents face and tailor their courses to empower them to meet these head on. Their events are innovative, child focused and peaceful allowing parents to relax and children to have fun.”

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“When my youngest child was born, it was a hectic time with three small children under the age of four. Especially as my oldest has special needs. My husband’s job meant it wasn’t possible for him to be around much at crucial times of day. Evenings were particularly challenging for me so Entrust Care Partnership came to the rescue. They provided me with support from a volunteer to spend time with my son and at times my little girl too. It gave me the chance to get their tea and breastfeed my newborn with the knowledge and comfort that my eldest was safe and engaged. It was a life saver.”

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Please do follow us on Facebook for information about our regular Coffee & Chat sessions, all of our workshops and events.

 

Lynne Barton

July 2018

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